The True Divide of the Disabled Community

Division is everywhere in this world; it is part of our everyday lives. There are always two sides to an issue. Sometimes one side is clearly right, while other times there is merit to both sides. I am writing about the divisions in the disabled world, because that is what I deal with every day—good and bad. There are a few examples of it that I am going to go […]

 

Osteogenesis Imperfecta: No limits

“You have what?” Imagine being asked this question ten times a day, seven days a week, three hundred and sixty-five days a year. Let me start from the very beginning. I was born with a rare genetic bone disorder called Osteogenesis Imperfecta, more commonly known as brittle bone disease. Not many people are aware that this disorder even exists, let alone how it changes the way we act, think, and […]

 

An Open Letter To The Mom In The Apple Store

  To The Mom in the Apple Store, Today, before we spoke at the Apple Store, was not the easiest for me. The night prior, my daughter had the first night terror of her life. She is just shy of 3 years old. When she uncharacteristically woke at 11:30 the night before, I figured she’d be dead asleep in no time at all. She is a good sleeper. She woke excited. […]

 

Accepting My Invisible Disability: The Party That Changed My Life

I was born with a genetic disorder called Ehlers Danlos Syndrome. It affects my joints and ligaments, causes me daily pain, and leaves me with limited energy and abilities. I am disabled. But for years I denied it. Eight years ago, I recoiled from the word. I wasn’t disabled – I just got tired easily. I wasn’t disabled – I just couldn’t do the same things that my friends could do. […]